People may have a lot of things.
You may even look at them and think, ‘Oh, they have so many things I don’t. They have so many things I wish I had. I would be so much happier if I had the things they have.’
And by ‘things’, I mean all things. Like family, friends, money, careers, houses and homes, hobbies, plans, places to be and people to talk to. All the things.
But the problem is that no matter how many things people have, it doesn’t mean that they have the one thing they need to keep living.
After taking a nice quiet 40-minute walk home in icy wind without a scarf, also getting lost a couple of times, I feel I won’t even need corona to get myself a nice two-week vacation being sick at home.
When it comes to doctors and therapists… I can’t help to feel like I’m screaming into a void. I’m constantly trying to send an SOS. Tell people that something is wrong. That walking around with daily headaches, chronic exhaustion, thinking ‘I’m so fucking tired…’ from morning to evening every single day without exception, feeling like my consciousness is slipping away multiple times during any day, having to force myself to move because I keep freezing in space, getting lost in time, forgetting what day it is, and especially what day of the week it is really not right… And yet not a single medical professional I’ve met has taken it seriously enough to actually look for WHY, instead of trying out a collection of medications, and then shrugging me off when I tell them none of those work.
Then, I face a situation where, having a very stressful and anxiety-filled week, I can’t even rely on any tranquillisers because I’m too groggy and scatterbrained as I it is, and I’m too afraid to add any chemicals (or not so chemicals) in the mix that can make me feel even less ‘present’ in the reality.
Instead of tranquillisers, today I have to rely on food, therapeutic activity of copying books by hand, and first seasons of Great British Bake Off.
The ever-growing number of wrong steps and panicked lunges in inappropriate directions can hardly come as any kind of surprise when the ground is constantly crumbling beneath your feet, biting on your heels.
And there’s nothing else.
No stop, no rest, no safe haven, no place to step back and breathe before taking a step.
Year, after year, after year.
And the point comes when making mistakes and wrongs is not the worst thing anymore, it’s not being able to stop caring about making them that is the absolute worst.
Every time I see a person on tv being portrayed as having a hangover—nursing a headache, wearing sunglasses, grimacing because everything is too bright and too noisy, and moving too fast is rewarded with spikes of nausea—I get this disturbing feeling and just want to say…
… … But that’s exactly how I feel every day (that I have to go outside)?…
And without any drinking.
I wonder if I’m getting worse with age, or is it just the constant exhaustion that makes my senses oversensitive, because I have no resources left for tolerance.
I don’t know which one is the worst one, sight or smell. The sound is the easiest to deal with, and touch is controllable once you find right clothing. Unfortunately, too much about smells and light is shared with other people, so they are very difficult to control, unless I stay locked in alone.
This time around I had to use such measures and carrying a lamp stand from the corner of the room into the bathroom, because there were 4 lights in there and I couldn’t turn them on/off separately. If there wasn’t a lamp I could bring in, I’d probably have to bathe in darkness or use my laptop as a source of light. I don’t understand why people think they need so much light for one tiny room. Or for any room…
I also had to waste money on buying 2 separate room aromas, Febrese, and bath bombs. For a hotel room I’m staying in for 3 nights. I don’t think I ever had to go as far before.
While I love to pretend like I couldn’t be happier about escaping the chaos, the buzz, the heat, and the air pressure, and all the ‘too much’ things about the overcrowded megalopolis city I live and work in, the first thing I notice when I reach one of the small towns I like to go hide in, is that I have very little ability left to deal with little things about living and being outside without the anonymity the state of being one speck of sand in the overflowing sandbox that is Tokyo provides.
I’m making this about more than it is.
I just can’t really handle the difference in amount of human attention you draw just by existing in a small town, and the way that difference feels on my skin when I say, enter a cafe.
And the fact that there are no easy chain coffee shops where I can pop in, quickly buy a few giant cups to go and haul them back to my room to read and write in peace nowhere in the vicinity is throwing me more than it should.
I’m too used to have a selection of various coffee shops on every corner… And now I need to gather courage before I can enter a new kind of place.
In fact, I wonder if I even can discover a place where I can get a coffee to go at all around here at all…
Since today happens to be ones of those days in a year when my apartment is to be invaded by inspectors of one kind or other that happens once a few months (water pipes, fire alarms, whatever they can come up with),
and I had to spend my weekend trying to pretend that I’m not a child of chaos and autism, and can actually keep my living quarters presentable enough for strangers to barge in and not stare in shock,
I’ve also been watching Netflix while trying to clean, which left me with a thought that I might have an easier time with living if I could convince myself that I was watching some weird Science Fiction every time I watch…practically anything.
It might save me from all the flinching and dread I feel each time when I watch something about humans and realize I can’t comprehend, can’t identify, and can’t feel any affinity.
It also made me sit and think about how I wish I could know what other humans feel when they watch other humans.
My recent panic episode (triggered by newest medication messing with my heart rate and Japanese drug stores disappearing while I wasn’t looking and not selling anything that would let me measure and record it) led me to purchasing a ‘fitness’-type watch that now records my heart rate and sleep patterns, etc., constantly.
(Unfortunately it also now refuses to let me turn off GPS on my phone, which is bound to give me another episode some time soon, because I’m paranoid enough to want GPS to always be OFF on all my devices.)
There were a couple of interesting measurements, like the fact that there is a visible difference between me being at home and me not being at home (in general 20-40 bps difference between me sitting at home doing nothing and me sitting at work doing nothing at any point of time), or rapid spikes while I’m getting ready to leave in the morning…
But the thing I found most interesting is that since the program marks heart rate above certain number as “fat burning”,
according to it I’ve been “burning fat” every time I read today (I’m on a stressful action-sequence ending of a sci-fi drama),
and wouldn’t that just be the dream?
(Though, it’s all total bs, because if I was burning anything every time they say I do (more than 5h in a day), I wouldn’t be gaining weight from just thinking about food as I tend do, would I?)
I read because everything but reading is a struggle and chore. Moving, thinking, eating. Breathing.